Yesterday was Noah's 4 month well check. I was so excited to see what our little guy would weigh in at. When we walked into the doctors office the enetire place was dark. The power had gone out and the generator had not kicked in yet. The individual rooms were too dark since they have no windows so we had to go into the office's kitchen!
Noah received his exam on top of the kitchen table. Something I am sure he will enjoy telling his kids one day. Anyway he looks great. He is 26" long which is nice and tall 90%. He weighed in at 13.12 The doctor said that it is an ok weight and he did gain more than a pound since his last visit but it did make me feel my initial concern that he may not be getting enough to eat could be accurate. He is healthy and received his shots after a bit of convincing on the docs part since we had some concerns. I think we will try a little formula just at night to see if it helps Noah to sleep any more than he does now. We can also start him on some cereal which I bought today. We are going to do oatmeal firs instead of the traditional rice and see how he does.
Friday, October 1, 2010
Wednesday, September 29, 2010
Lillie's in the show!
Lillie found out today that she did get a part in the play. It is called Acorn to Oaks. It looks like it will be a very fun presentation. In the past her school has done shows but nothing like this. They will have three show dates between December 10th and 11th if you want to mark it ahead of time. Lillie choose not to try for a speaking role but will be in several songs. The one she likes the most is called "The RUMOR Weed" A classic Veggietales song. She has several practice dates ahead so she is keeping very busy.
Tomorrow Noah is going for his 4 month well check. We have been concerned about getting his shots. After being so concerned that Lillie had autism and knowing the rates are so much higher for boys it is definitly on our minds. Noah has a runny nose right now too so it may just not be the right time. I am excited to see how much he weighs. I have been struggling with nursing. I had breast surgery after a lump was found two years ago. I was told it would not compromise nursing but I am only making about 5% of my milk from that breast. I question at times if Noah is getting enough. Well his weight will tell us alot. He also may be ready to start some cereal which will help things. He does not sleep at night and boy am I tired. I think he may just be too hungry but I can't be sure. I will let you all know soon how we make out tomorrow.
Tomorrow Noah is going for his 4 month well check. We have been concerned about getting his shots. After being so concerned that Lillie had autism and knowing the rates are so much higher for boys it is definitly on our minds. Noah has a runny nose right now too so it may just not be the right time. I am excited to see how much he weighs. I have been struggling with nursing. I had breast surgery after a lump was found two years ago. I was told it would not compromise nursing but I am only making about 5% of my milk from that breast. I question at times if Noah is getting enough. Well his weight will tell us alot. He also may be ready to start some cereal which will help things. He does not sleep at night and boy am I tired. I think he may just be too hungry but I can't be sure. I will let you all know soon how we make out tomorrow.
Thursday, September 23, 2010
Noah's Portraits
On Tuesday we took Noah to have his pictures taken at Sears. He did a great job posing for the photographer. We had no worries about getting him to smile. If you would like to take a look click this link http://www.SearsPhotos.com/ViewSharedAlbum.aspx?ShareID=3bd2e232-18a9-4a88-9ab2-cd6f41ec9a34
Life has been a bit more hectic than usual. Tonight Dave and I are running another 8 week sign language class at Own J Roberts High. Its so much fun and we both love teaching its just that I am not feeling ready to have a babysitter. I guess I will be ready though in a couple of short hours.
Lillie is now doing swimming, Awana and girl scouts and today may decide to audition for a part in her school Christmas musical (she was undecided this morning). Dave is still working alot, I am currently involved in two moms groups and now offered to also be the class mom at Lillie's school. and now we are teaching the signing class.
I often feel overwhelmed but I like to keep busy because a idle mind is the devils playground. Being busy occupies my time and then I do not sit and ponder over things.
I am looking forward to seeing how Lillie makes out if she does audition. I am sure she would do great as a dramatic actess! So check out Noah's photos if you have time they are very cute.
Life has been a bit more hectic than usual. Tonight Dave and I are running another 8 week sign language class at Own J Roberts High. Its so much fun and we both love teaching its just that I am not feeling ready to have a babysitter. I guess I will be ready though in a couple of short hours.
Lillie is now doing swimming, Awana and girl scouts and today may decide to audition for a part in her school Christmas musical (she was undecided this morning). Dave is still working alot, I am currently involved in two moms groups and now offered to also be the class mom at Lillie's school. and now we are teaching the signing class.
I often feel overwhelmed but I like to keep busy because a idle mind is the devils playground. Being busy occupies my time and then I do not sit and ponder over things.
I am looking forward to seeing how Lillie makes out if she does audition. I am sure she would do great as a dramatic actess! So check out Noah's photos if you have time they are very cute.
Friday, September 17, 2010
Girl Scout's
We took Lillie ot her very first Girl Scout meeting yesterday. Lillie was not sure if she wanted to go but decided to give it a try. Several of her freinds from school were there making it easy for Lillie to settle in. She made some cool crafts and learned the Girl Scout motto. She told us she liked it and wants to join. She is what they call a Daisy. She will get a vest to show her badges etc in a couple of weeks. She will look so cute. Just to prepare you. Lillie will be selling GS cookies sometime in January!
Lillie already belongs to a club like girl scouts called Awana. It is run at our church on Sunday nights. She does games, stories, crafts etc. There she also has a vest and receives merit badges and such but it is all based on her bible memorization. She did an amazing job last year and won many awards so she is already geared up to start her third year with the group. Each year they have a pine wood derby and Lillie has won a trophy two years in a row. I'll tell you for a little girl who they feel is not very social she has a very busy schedule!
Lillie already belongs to a club like girl scouts called Awana. It is run at our church on Sunday nights. She does games, stories, crafts etc. There she also has a vest and receives merit badges and such but it is all based on her bible memorization. She did an amazing job last year and won many awards so she is already geared up to start her third year with the group. Each year they have a pine wood derby and Lillie has won a trophy two years in a row. I'll tell you for a little girl who they feel is not very social she has a very busy schedule!
Lab Results Are In
I spoke with Lillie's doctor yesterday after all the lab test came back. I have not seen the actual numbers myself. The doctor said all the test were totally normal and we have nothing to worry about. Of course I am shocked but grateful that Lillie has no medical issues as a result of her poor eating. We still plan to pursue CHOP though to help us work on the behaviors associated with feeding in our home. We had so many great prayer warriors lifting Lillie up this entire time and God heard everyone of them. Its a great feeling to know that Lillie is so healthy
Tuesday, September 14, 2010
Results
Dave and I went for our follow up appointment today at Dupont. They do a very thorough review and for that reason I will need to briefly sum up what they said because their report is 18 pages.
Lillie scores great on all her test. Her cognitive and language score were above age for her and she only showed stress when trying to memorize and repeat back things in order such as...20,40,60,60,40,20. So this could be tough with phone number and such.
The test we did for Lillie her teacher also did and our results were very much in line with each other which is great. Lillie shows alot of struggles with social interaction. This has been a concern for years which is what prompted us to enroll her in so many activities with her peers. It still seems she has alot of struggle with being age appropriate in play and letting others direct the play. Lillie likes to be in charge!
Lillie also shows difficulty with transitions and following orders or directions when it does not go according to the plan she has already set for everyone which can lead to defiance. Lillie also shows anxiety in many ways but does not show it in any one specific way.
They told us that although many of Lillie's symptoms are autism related they would not classify her as being autistic. She does not have the language issue that is related to that disorder. She does show the sensory, feeding and social concerns.
They did suggest that Lillie be given a feeding eval to determine if a feeding clinic would be appropriate for her. We already have this set up in November at CHOP.
They feel Lillie has a generalized anxiety disorder and they do recommend that she receive therapy for it. They beleive it is related to the social situations she is in and seperation anxiety.
The main diagnosis that they came up with was disruptive defiant disorder. This is a disorder basically where kids want to be in control of situations and when they cant thay take extreme measures to get their way. I think this sounds like most kids today. However in this case it is almost like Lillie is unable to stop herself and does not pre-think it or want to do it but she feels so out of control otherwise and then it leads to the anxiety.
They are concerned about Lillie's lack of social cues and functioning with her peers which can get worse as she matures with older groups etc. They suggested a play therapy group that will teach her ways to interact and play with others in a manner more in line with kids her age.
We have a few things to look over and consider. We need some time to think about it. Also Lillie had the labs done today and her eating can contribute to defiant behavior. We need to see how those numbers play out to determine if that piece of the puzzle can answer any thing more for us.
Lillie scores great on all her test. Her cognitive and language score were above age for her and she only showed stress when trying to memorize and repeat back things in order such as...20,40,60,60,40,20. So this could be tough with phone number and such.
The test we did for Lillie her teacher also did and our results were very much in line with each other which is great. Lillie shows alot of struggles with social interaction. This has been a concern for years which is what prompted us to enroll her in so many activities with her peers. It still seems she has alot of struggle with being age appropriate in play and letting others direct the play. Lillie likes to be in charge!
Lillie also shows difficulty with transitions and following orders or directions when it does not go according to the plan she has already set for everyone which can lead to defiance. Lillie also shows anxiety in many ways but does not show it in any one specific way.
They told us that although many of Lillie's symptoms are autism related they would not classify her as being autistic. She does not have the language issue that is related to that disorder. She does show the sensory, feeding and social concerns.
They did suggest that Lillie be given a feeding eval to determine if a feeding clinic would be appropriate for her. We already have this set up in November at CHOP.
They feel Lillie has a generalized anxiety disorder and they do recommend that she receive therapy for it. They beleive it is related to the social situations she is in and seperation anxiety.
The main diagnosis that they came up with was disruptive defiant disorder. This is a disorder basically where kids want to be in control of situations and when they cant thay take extreme measures to get their way. I think this sounds like most kids today. However in this case it is almost like Lillie is unable to stop herself and does not pre-think it or want to do it but she feels so out of control otherwise and then it leads to the anxiety.
They are concerned about Lillie's lack of social cues and functioning with her peers which can get worse as she matures with older groups etc. They suggested a play therapy group that will teach her ways to interact and play with others in a manner more in line with kids her age.
We have a few things to look over and consider. We need some time to think about it. Also Lillie had the labs done today and her eating can contribute to defiant behavior. We need to see how those numbers play out to determine if that piece of the puzzle can answer any thing more for us.
She Did It!
Lillie had her blood test done this morning! I have to be honest and tell you it did hurt her and she did cry and scream alot, but they got the vein on the first try and they got enough to run all the required test. God shined his light and this too may now pass.
Subscribe to:
Posts (Atom)
