Results

Dave and I went for our follow up appointment today at Dupont. They do a very thorough review and for that reason I will need to briefly sum up what they said because their report is 18 pages.

Lillie scores great on all her test. Her cognitive and language score were above age for her and she only showed stress when trying to memorize and repeat back things in order such as...20,40,60,60,40,20. So this could be tough with phone number and such.

The test we did for Lillie her teacher also did and our results were very much in line with each other which is great. Lillie shows alot of struggles with social interaction. This has been a concern for years which is what prompted us to enroll her in so many activities with her peers. It still seems she has alot of struggle with being age appropriate in play and letting others direct the play. Lillie likes to be in charge!

Lillie also shows difficulty with transitions and following orders or directions when it does not go according to the plan she has already set for everyone which can lead to defiance. Lillie also shows anxiety in many ways but does not show it in any one specific way.

They told us that although many of Lillie's symptoms are autism related they would not classify her as being autistic. She does not have the language issue that is related to that disorder. She does show the sensory, feeding and social concerns.

They did suggest that Lillie be given a feeding eval to determine if a feeding clinic would be appropriate for her. We already have this set up in November at CHOP.

They feel Lillie has a generalized anxiety disorder and they do recommend that she receive therapy for it. They beleive it is related to the social situations she is in and seperation anxiety.

The main diagnosis that they came up with was disruptive defiant disorder. This is a disorder basically where kids want to be in control of situations and when they cant thay take extreme measures to get their way. I think this sounds like most kids today. However in this case it is almost like Lillie is unable to stop herself and does not pre-think it or want to do it but she feels so out of control otherwise and then it leads to the anxiety.

They are concerned about Lillie's lack of social cues and functioning with her peers which can get worse as she matures with older groups etc. They suggested a play therapy group that will teach her ways to interact and play with others in a manner more in line with kids her age.

We have a few things to look over and consider. We need some time to think about it. Also Lillie had the labs done today and her eating can contribute to defiant behavior. We need to see how those numbers play out to determine if that piece of the puzzle can answer any thing more for us.