Well we have completed week #7 out of our 8 sign language classes. We really enjoy teaching them but I have to admit I am ready for the break. Tuesday Lillie had another school field trip to the Camden Aquarium. This time all of us went. It was so much fun for me and Noah to go. He seemed to enjoy seeing all the colors of fish and the big sharks swimming over our heads. Lillie loved being with all her friends and watching the penguins outside. It was a busy but fun adventure. Saturday we are going to Sesame Place for the day and then Sunday Lillie has her first swim meet at the YMCA. She is leary about wearing the required swimsuit so we will see how it turns out.
Last week Lillie did finally have her feeding eval at CHOP. They gave us some pointers and said we are on the right track. They said she could do well in the inpatient program but it turns out they do not take our health insurance! They think she can continue with us at home on a special food plan and then have some out patient OT and feeding therapy on a weekly basis. We plan to set that up soon. In two weeks we are back to upont for one last visit. Lilie has a skin pigmentation problem and it is really starting to affect her self-esteem. When she was small it looked like a small birthmark on her tummy about the size of a pea by the time she was three it resembled a handprint and now at 6 it bands around her entire tummy and back. We have seen several doctors for it but no one seems to know what it is or what to do about it. We now are going to the cream of the crop in hopes to get some answers. We were told it could be Vitiligo which is an auto-immune problem usually caused by a vitamin deficiancy. Hopefully we can get some answers this time.
Noah is doing great. He has been working on sitting up but still falls forward. He is babbling all the time and of course always smiling!
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